Database giving a voice to patients
GUTS has been supporting an important innovation designed to give colon cancer patients autonomy over the way in which they can manage their own symptoms and side-effects.
The Colorectal Database project is hosted on a platform specifically designed to gather information from patients undergoing treatment for colon cancer. This project differs in that it is based on Patient Reported Outcomes (PROMS), so the information gathered is directly or indirectly from patients themselves, reporting on symptoms and side-effects that they experience. The input of all restrospective records has been completed and now current records are being added to the system.
The long term aim of the project is to provide a bank of information and advice for patients undergoing treatment for bowel cancer. Each patient will have a portal to log into. Any information they input will be only accessible to clinicians involved in their treatment but the portal will also allow patients be able to raise questions about side effects, give feedback or learn more about their treatment.